Joy had a fairly restful night and after the morning ritual of tubes in, tubes out, x-rays, meds and blood for testing, she asked to go for a walk. Although we stayed in the Acute Care Unit, her distance was equivilent to one lap in the Step Down Unit. After sitting in a chair and before anticipating the surgical team to arrive for the biopsy, she walked a full lap which includes a couple hallways outside of the Acute Care Unit. She has found that constant coaching and talking helps to distract her so we are perfecting that together. And, and, and she did all of this with only a couple stops (standing, not sitting)and without the backup of someone pulling a chair behind her, just in case. Fantastic progress.
Several of the RN's have told her that anxiety has presented in 100% of the lung transplant patients they have cared for and Joy's progress is very typical and should not be compared to others progress or any other type of surgery including heart by-pass and heart transplant.
The biopsy, which is a more involved surgical procedure was completed today and the extracted fluid and tissue looked pretty good and the preliminary results may be available tomorrow afternoon. Pneunomia is still present but abaiting. If the biopsy shows rejection, they can treat that with additional meds.
She wanted me to thank each of you again for your cards, letters, e-mails, blog messages, prayers and whatever else. She really appreciates it.
Possibly, depending upon overnight stability and her continued mobility, she may be moved back to the Step Down Unit tomorrow. And, her goal is to be out of the hospital this weekend. She may just pull this off.
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8 comments:
Tell Joy how very proud I am of her and her determination. Sharon
Dear Wayne and Joy,
WOW! You sure know how to impress us all Joy. You are doing wonderful and it won't be long and you will be released. What a blessing that will be for you all. As always, keep one foot in front of the other and success won't be far off. Continued prayers for all involed. You are a breath of fresh air for us all. Thanks Wayne for doing a marvelous job keeping us all updated.
Love, Dave and Jan
This is wonderful news. We hope that tomorrow will be another day of solid steady progress. Joy,you Wayne and family continue to be in our thoughts and prayers.
Love
Kitty and Bill
Dear Joy and Wayne,
The news just keeps getting better every day. I am very happy to hear that Joy is feeling better and is continuing to progress by leaps and bounds. I can feel her determination in these blogs, Wayne, and you two make a terrific team: Wayne, the coach and Joy, the hurdler.
Ashley got her red 2001 Audi today and we'll be leaving to take her to Florida in a couple of days. She is so proud of her car, which has almost 63,000 miles on it, but drives like a dream and has all of the bells and whistles you can imagine.
We will keep posted of Joy's progress by talking to Mom and Dad while we're away.
We love you both!
Laraine
Hey!
I'm so excited to read the news :)
This weekend is the big move...so I'll be down there living after Saturday!!! It's all gone so quickly, that's for sure!
Love you both!!!!
~Lora
WOW! Is right. What great news. Wayne thanks for getting this blog up to date. We look at it every night. I then print it out for Arleen and Beth Messina. You and Joy are in our prayers daily.
God Bless the Bulla family.
Love, Audrey Wood and Betty Frank
Dear Wayne and Joy:
You've both come so far - what a team! Thanks for letting us know what is happening. All of your extended family up here in the great white north of Buffalo Grove follow every word of the Blog and its updates and keep Joy and you all in our prayers at all times. Joy must be looking forward to rehabing by walking around her beloved Duke University. I hope to hear that she has "left the building" very soon.
Blessings, Dee
You go, girl!!
You know you are in my prayers every day. And I visualize you breathing, healing, walking . . . All those tough things you are taking on.
All my love,
Janet
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