Another Difficult Day

All but two drainage tubes were removed on Sunday and vitals remained quite stable. Walking was limited to about a quarter of a lap.

Panic and anxiety attacks are absolutely hindering her mobility even to the extent of moving from the bed to a chair. She feels like she is going to drown and die. Extremely out of self control getting up or standing. Unfortunately, the class of meds that control this slow down the breathing which is not what they want with new lungs. The RN's, Resident and PT's have documented her records accordingly and are advocates on Joy's behalf. Coaching, counseling and breathing excercises have not helped. Situations like this are somewhat common in lung transplant patients so they just need to find a way to help Joy.

I am going over early this morning (Monday) in hopes of catching a moment with her lead physician to plead her case.

Overall physically she is progressing but she will never leave that hospital until the anxiety / panic attacks cease and allow her mobility. Very tough experience.