Stable With Some Progress

A day without a bronc was a relief. They introduced a new med ganciclovir which is a chemotherapy infused drug to aid in the prevention of disease in solid organ transplant recipients. It appears she is tolerating it at this time. Additional x-rays and normal in room PFT tests, breathing treatments and daily bloodletting rounded out that portion of the day.

We are doing more "going home training" and the daily walking assistance has now been assigned to me. That first day at home will be a severe adjustment so we need to learn all we can. Since early morning meds must be taken at 8:00AM, I am afraid her days of sleeping in are over forever. And, any thoughts about turning in early at night must wait until she takes another bowl of meds at 10:00PM. Naps will be at a premium since other meds must be taken at Noon and 6:00PM. These times may be subject to change but that is her lifelong future. She walked eleven laps today (3300 ft) in three separate walks. She still uses the heavy duty walker, O2 and requires some assistance. She walked with sneakers today and after thirty days without shoes, it took a couple laps to adjust to the feel.

So, the goal continues to walk more, wean from O2 and my assistance. This will come and she is making progress. They have removed some more tubes which makes it easier to get in / out of bed, walk, bathroom breaks and make her feel more comfortable. No update on the day they plan on performing another biopsy to check on the rejection. We are hoping for progress since this is a major rejection and therefore the aggressive meds.