A Major Step

Using my love for auto racing for an analogy, Joy rounded turn one when she left Acute Care and may have finally rounded turn two today, but the long backstretch is coming and she must now build momentum to be ready for three, four and the finish line. The caution flag is out but ready to go back to green.

After a frank discussion (no, make that extremely frank and candid) with her primary physician and several members of the Transplant Team, they decided to give her some meds to help with the anxiety and reduce the prednisone significantly. Her part in this is to dig deep within and fight as hard as she can otherwise, the consequences are bleak, so read between the lines. I think the new meds helped more than the discussion but combined, it may have worked!

After receiving the new meds, she was able to walk a full 300 ft lap with only two rest stops and duplicated that in late afternoon. She also sat in a chair for a few hours, was wheel chaired to x-ray, walked into her bathroom with limited assistance and survived another bronc. They re-introduced the BiPap machine for a couple hours and nights to help her breathing and purge an increasing amount of carbon dioxide build up in her lungs. Again, mobility is key. All of this with minimal anxiety.

All in all, we think she had a fantastic day and though many concerns remain, she had to get to this step with the anxiety issue first. Period.

I cannot wait until tomorrow.