The title for this post is a quote from one of her doctors describing her progress today. Previously he described it as three steps back and one step forward. He said he was extremely concerned early on.
She walked twice although not the desired distance, but she is trying. She had another x-ray and today's bronc showed improvement over yesterdays (rejection issue). "Sugar" level which is checked every three hours dropped from a high of 507 to 170 (goal 100) today and it appears the insulin injections she receives after these blood tests are helping. Again, this issue is med induced. Another IV line was pulled and moderate pain is being addressed.
By late morning, she was told that they planned to remove two of the drainage tubes from her and move her to Step Down. And at 4:25PM today, she was moved to her new room. Still a vast maze of tubes and monitors hooked up but this step was significant and has breathed a little fresh air into those new lungs! Now, the work begins and she knows it. Walk, rest, walk, rest........you get the picture.
The kids have been here a lot and have begun to get back to their responsibilities at home. Crystal is local and back to work after taking off a week so she can easily drop in. Kevin returned to Houston for a few days and came back for overnight visit this week. Caroline went home after a week, tended to the kids and came back for a few days this weekend. She returned home today to get the kids ready for their new school year next week................Caroline can't possibly miss Chloe's first day in Kindergarten and Kierra's birthday. Happy Birthday Kierra! Jim drove up from his station in Florida early in the process to see Joy and has since returned. Cathy was also here over a week and returned home a couple days ago along with Kayce. Cathy is back to work and Kayce gets to sleep in her own bed.........and sleep in and not sit in a hospital waiting room all day. Each of us have bought something like books, magazines, neck pillows, creams and comfort items none of which has peaked much interest however, she turned on the TV tonight and that is a first since transplant. Just another sign of better things to come.
While all of these things are encouraging, we anticipate set backs and we have talked about that but feel we have a realistic approach to the realization that it "ain't over yet". But we will take these positive steps and move forward.
Now, I am going to bed. Good night.
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4 comments:
Bless you, Wayne.
Pulmonary Rehab was huffing today. So many breaths - so little O2... Please tell Joy that Keith is anxiously watching her process and wanting to rid himself of his O2 tank as well.
We are holding her place with no questions asked - there better not be any questions!
Danielle is @ Mayo next week - she and Nora will be our very own Smoking Cessation experts, which we are so proud. I'm calling her our Cigarette Sheriff!
Take take of yourself, Wayne and pinch Joy for me!
Breathe easy!
Judi
Hang in there, Wayne, and all of the kids! It sounds like small steps of improvement are being made. Know we're sending good energy your way.
Gail
From afar it sure sounds like Thursday was a BIG day, " moving to the step down unit " very encouraging. We continue to hope and pray for Joy to have more steps forward than back and to be able to get rid of more tubes.
Love
Kitty and Bill chandler
Prayer for the Sick
Dear Jesus, Divine Physician and Healer of the sick, we turn to you in this time of illness. O dearest comforter of the troubled, alleviate our worry and sorrow with your gentle love, and grant us the grace and strength to accept this burden. Dear God, we place our worries in your hands. We place our sick under your care and humbly ask that you restore your servant to health again. Above all, grant us the grace to acknowledge your will and know that whatever you do, you do for the love of us. Amen
Love, Jan and Dave
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