The chronic diarrhea continued throughout the night and morning hours and had her totally wiped out which limited her mobility. Finally in early afternoon, she received a med that helped and she pushed herself to walk four laps with Kevin and me. Then late afternoon, Joy walked for the first time without the aid of the walker. Kevin and I lightly supported her on each side and pulled the walker behind as a back up. We walked three laps before returning to bed for early evening feeding tube and another round of chemo.
The Transplant Coordinators and the pharmacist were in today to talk more about going home issues including meds and home health care products and services. They still plan to train Joy and me on the insulin monitoring and injections and also how to clean and administer nourishment for her stomach feeding tubes. One of the Transplant Team surgeons indicated he was considering her for release very soon once these loose ends are finalized.
Getting her home will be nice but, the thought of not having the security blanket of the doctor and nursing care available as it is in the hospital makes us both a little anxious. This will be a big adjustment to say the least.
We are most appreciative of your cards and letters and thank you again for your thoughtful consideration.
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4 comments:
Good news--"out the door"
I understand the concern about not having the medical team with you but they are only a phone call away. Easy for me to say, I know.
Keep up the good work, both of you!! Sharon
Joy,
Keep up the good work.I'm sure going home sounds good but at the same time makes everyone a bit nervous. You are doing so well I know God has big plans for you. Hang in there. You are always in our prayers.
Wayne thanks for your nightly Blogs we look forward to them every evening.
God Bless,
Betty & Audrey
Boy, do I know what you mean about "home". It sounds so good ... but then the thought of being without the docs and nurses and respiratory therapists and just HELP in general is scary.
But, they would not send you home if they thought for one minute you could not handle it!! So, there you are! You can handle it!
With the incredible love and support you are getting from Wayne, your family and the vast number of people and all the recorded prayers I read on the "comments" part of your blog - you are in GOOD HANDS. The Almighty obviously is not done with you here.
I'm in awe of you!!! You have incredible courage, patience, endurance. Many less strong would have folded long ago. You are the BEST!!!
Much love,
Jackie Wilson Rose
Hey Joy & Wayne,
Almost checkout time. That is really exciting! All the hard work is paying off. Glad to hear that Kevin is able to be there for awhile. Considering what you've been through at the hospital, going home will be a piece of cake... maybe even some red cake. Tell Joy to keep on trucking... you're all on the homestretch. Best to all,
Steve & Trina
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