Joy had a two hour reassessment evaluation this morning at the Center for Living on Duke Campus and they will use this information to manage her exercise process over the coming weeks. We returned for a modified session this afternoon and she tolerated it better than she expected. Joy met a new pre-transplant candidate that started the process after Joy had surgery and he thought she was starting her rehab for the first time. She responded, " I am but this is my first day back after transplant". He was amazed and told her she looked better than a couple other recent tranplant patients that he had met. Hopefully, this will provide some inspiration to him. The only one that remains from Joy's original group is still awaiting a donor and has been on the Active list since February. She has been living here in temporary housing since that time, just like we are! Despite that, she is very positive and remains upbeat.
Although our daily schedule has not changed, we are finding ways to manage the process better and becoming more efficient. Other than providing Joy the supplies and equipment, she is doing the insulin testing and injections herself and Crystal is still coming each evening after work to administer the chemo therapy IV. This drug takes an hour or so to run so while Crystal stays with Joy to monitor the IV, I now use that time to run errands. While Joy was in rehab today, I stayed in the lobby in a big comfortable chair and even dozed off for a few moments. So there Laraine, I took a nap!
It is now 5:35PM and Joy is taking a well deserved nap but all good things must come to and end so I need to awaken her and serve her a gourmet meal and then Crystal can administer the chemo. What a fine life she leads, being waited on like this.
Monday, August 6, 2007
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2 comments:
Wow, all of you, I can see why you feel rather overwhelmed! I'm impressed with the way you are all able to "step up to the plate" and perform all these complicated medical procedures. No doubt you have learned more than you ever wanted to know about all of this!
You are all in our prayers. Joy, you are mentioned every week in our service at Kingswood, so you know those are good prayers coming your way! And Wayne, now that we have a better understanding of what you must do to help Joy, we will redouble our prayers on your behalf as well!
Best wishes with rehab. Hope it goes very well. So glad that you are at "home" now!
Love,
Ruth and Miles Hoffman
Ditto to Ruth and Miles' message. Pioneer UM has also "stepped up" our prayers for you, Wayne. Joy has been on our list since long before the transplant and will continue to be. May God continue to bless you both with healing and rest. Sharon
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