Joy had a very restfull night and slept the best she has in weeks. Early this morning, she had a lung biopsy surgical procedure and has recovered nicely. They removed a considerable amount of fluid and are awaiting initial lab results for preliminary diagnosis. Infection and/or rejection are probable, but time will tell. Until those results are known and specific treatments are determined, they are giving her several antibiotic and rejection medicine IV's. They are letting her bedrest with 2 lpm O2. Depending upon her status tomorrow, we will probably start walking the halls and I am sure this will further reveal how well she can tolerate activity once again.
Length of stay is unknown and will depend upon diagnosis of the problem and subsequent treatment. She has done everything asked of her and once again, it is the doctors time to fix the problem so we can move on. And, we are confident they will.
I met with our social worker today to discuss the pre-discharge education and the overwhelming issues that confront the caregivers. She asked me to prepare a detailed presentation of our experiences along with my spreadsheets, charts, necessary durable medical equipment and detailed memos and she will use this in her future support group meetings. If time and scheduling allows, she will plan her agenda to cover this topic while we are still here. My desire is to better prepare and educate future caregivers to minimize the tremendous responsibilites that await them at home.
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Hi Guys,
A good night's sleep always does wonders for the soul. Glad to hear Joy is feeling better. Your project to help other caregivers sounds like a great idea. You've both been through so much. It's nice to think that other families might be be better prepared by following your advice. Hope you have a great day!
Love,
Steve & Trina
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