Joy continues to exhibit signs of improvement but nothing startling that would make headlines. She had possibly, her best day since 7/1 on Monday. Noting earth shattering, but completed her required exercises and was not completely wiped out when she got home.
Although it was a long 9 hour day with her lab work and CT Scan in the morning, surgeon appointment in mid afternoon and late afternoon with her primary transplant team physician, the day went well until we got home. Lab work showed some progress and the need to adjust a couple meds. Surgeon visit went well and validated that it was not an "IF" but a "WHEN" they would do the stomach surgery. We all agree that she needs to build more strength before another surgery. Her primary physician is still concerned that some signs of pneumonia remains and the biopsy cultures are not clinically conclusive at this time. She will have a bronc and lab studies next week and clinic appointment with primary physician the following day. Lung function has improved but remains low at 62% (I believe).
I was successful in getting the Rx for the Feeding Tube Declogging Kit that I mentioned earlier and not a moment to soon. Before giving Joy her evening meal tray last night, I attempted without success to flush the feeding tube. Crystal and I worked until after 10PM, sent Joy to bed without dinner with plans for me to go to Duke Pharmacy today (Wed) to fill the Rx. Finally, after another several hours this morning, I got the tube unclogged and fed her a delicious 2 hour lunch. Although I am diligent with the flushing schedule, it may require more water and more frequent flushes to an already volume intolerant patient. Such is life.
So, 2 more days of rehab, then Sat-Sun-Mon off, clinic Tue and Wed and back to rehab Thur and Fri. She has completed 7 of the required 23 days of rehab but we know she will need more than that, so the 23 is a moot point. She will continue rehab here until we head for Chicago and then resume an aggressive program there.
Happy Labor Day.
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3 comments:
A Happy Labor Day to Both of You!
It sure seems like your doing a lot of work too. But at least it sounds like all the effort is paying off with Joy's steady improvement. Hope it won't too much longer before life returns to a more normal routine. We'll be spending this weekend with the gang in State College. It's the home opener against mighty Florida International! At least we're expecting good weather. It's not too early to talk about a small wager on the PSU/OSU match up. That'll be here fast enough. Hope you enjoy the holiday weekend.
Love to all,
Steve & Trina
Dear Joy and Wayne
We are so glad to see a mid-week update. This is a good one with progress. Thank you Wayne for the posting.
Joy we are happy to learn that Monday was such a good day for you and trust that you will start having far more good days than bad ones. Lung function improving from 57% to 62% is nice progress and represents a gain of about 9%.
We will continue to keep you and your family in our prayers and wish you a very nice uneventful Labor Day weekend.
Love Kitty and Bill
Happy Labor Day to you!!!
We are going to Pigeon Forge with the whole crew for a few days. We rented a 5 bedroon cabin for all the family and quests. Jim's sister and one of her daughter's is coming down from Minn .
Sounds like you continue to have very busy and event filled days. I wish I could be there to sit on your bed as you did mine and keep you company. We had some pretty deep talks about everything!
Keep up the progress and good work. Wayne I think your work for helping others in the home care is wonderful. We had my sister at home for years ill and I know how frustrated we got with all that had to be done and how little we knew.
I am headed for Minn on th 9th of Sept. as my 80 year old brother is having open heart surgy. So I will get some cool weather for a couple weeks.
Thanks for the postings Wayne and keep up the good work. Our thoughts and prayers are with you both.
Love Jim and Pauline Johnson
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