After several days of sweltering 112 degree heat index, we anticipate much cooler temperatures into the upper 90's, so we have that going for us.
The last couple of days, Joy has participated in daily rehab and completed all phases of the exercise program. Not a stellar performer, but since this is not a competition, it all counts toward recovery.
It feels so good not having to go somewhere today and tomorrow (Sat and Sun). This is our first full weekend at home since June 23rd. What a deal!
One of the highlights of her recovery has been the Food Cures book she received from her nephew Daniel Bauer. It was written by Joy Bauer and Dan requested the author to autograph it for Joy, which she did. So, it is from the real Joy Bauer to the real Joy Bauer. Kinda neat!
During my idle time while visiting Joy in the hospital last week, I continued to think about the overwhelming experience from her last discharge and homecoming. I felt this was something missing from the Support Group training and decided to be proactive and write a guide that would benefit others that follow. So, I put together my thoughts, prepared an outline and then a couple rough drafts (I alluded to this in my August 9th blog update). My presentation to the transplant social workers was received with praise and appreciation and with a little planning, this was the topic for this weeks Support Group. The questions were numerous and we only covered about a fourth of the material. Therefore, we plan to continue the topic next week until all the issues are covered. Going forward, they will incorporate this Caregiver Guide into their standard education process. It feels so good to know that this will better prepare future caregivers. Those days will still be overwhelming but they will be better prepared rather than it being a totally overwhelming surprise. If anyone is interested in a copy, send me your E-mail address and I will forward you the PowerPoint format presentation. It will be like reading a great novel, you won't be able to put it down. Not!
Well, with the 10AM items covered, it is almost Noon so I must now change hats and get back to my day job.
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3 comments:
Hi Guys,
Glad you're back home again. Hope you enjoyed your weekend "off". Trina & I drove out to the Pittsburgh area on Saturday for a golf outing with my college buddies. On the way home Sunday we stopped to have lunch with Mom & Dad & the Bortners. It was a mini Bday celebration for Mom and a mini anniversary party for Mom & Dad too. It's always fun to see the gang. Can't wait to see you guys too. Sounds like the rehabilitation work is going well-- always a big plus. We're looking forward to more progress reports!
Love to all,
Steve & Trina
Wayne, it must feel good to be able to be proactive and do something that could benefit others - and from one who has experienced it first hand-well done! Glad that it is "cooling off" there. It is muggy & hot here-not exactly the best conditions for our first day of school. Margaret gives an update each Sunday on Joy's progress and prayers are raised "up" for both of you! Godspeed and give Joy a hug for us, Love, Pam and Dave
Hi Joy and Wayne,
Glad to hear that Joy's condition is finally showing positive progress---we've been biting our nails with each day's e-mail---she is our hero for doing the battle so diligently.
Now Wayne, before you become a celebrity (ala Hemmingway, etc.) and out of touch with us common men, please forward a copy of your coming Best Seller---"Support Group Guide" by Wayne Bulla to---poppy0591@netzero.com
Thanks and keep the posting coming.
Bill & Wilma Odell
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