Today marks Joy's first year anniversary with her new lungs.
However, we are not celebrating in a traditional sense. No parades, marching bands, music, cheers or parties. This is also the first anniversary for the surviving family that lost the life of someone and that has to be tough for them. Joy has experienced a living hell this past year and still unwilling to concede that it was worth it. I can't blame her and each time we visit Duke and talk with friends and other transplant patients, we have a pretty good idea what is ahead and we don't like that either.
She was very sick during our return trip home and in a lot of pain so right now she feels pretty rough.
We just hope for the day that she feels pretty decent and begins to feel that the process is worth it. But for now, one day at a time.
4 comments:
Happy Anniversary,Joy. I wish you felt better so you could enjoy it. You had a rough few days of testing, tube removal, etc. That is all behind you now. Test results look great! Good work! Glad you are all home again. Have a great summer. Sharon
Dear Joy
We are very glad to hear that you have been taken off the feeding tube and hope that you will adjust quickly to small meals. The most exciting news is that you did not have rejection issues. We hope that the pain you had while traveling has subsided and that you are much more comfortable.
Wayne and Joy please enjoy your summer. A three month hiatus from Duke is well earned.
Love
Kitty and Bill
Congratulations! Hopefully the next year will be much smoother for you....you definitely deserve it!
I hope you feel better soon and can enjoy summer! Love you!
~Lora
Hi Guys,
Obviously it's been a rocky year but you've both perserved. We're all proud of the way you've handled life's curve balls. Not many people could do what you've done. Your most recent reports have been mostly positive. And that's another success story. Best Wishes for a healthy (and happy) year # two!
Love to all,
Steve & Trina
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