Monday's clinic visit resulted in stopping insulin injections providing of course, her blood levels remain within an acceptable range. Her Prednisone med was cut in half and the doctor said she should stop the can feeding and felt the tube should be removed. Chest x-ray was satisfactory and spirometry numbers were lower than last visit (she checks this daily at home) which may have worsened due to stomach bloating and therefore pushing on her lungs and diaphragm. It could be due to rejection and we anxiously await the biopsy results.
Tuesdays clinic was also good since the doctor removed her feeding tube and Joy could not be more pleased. She was ready to do battle but that was not needed. Next visit in six months. Now she must eat smart. Small slow meals of nourishing foods or the tube comes back.
Afternoon bronc went well and doctor said lungs looked pretty good. Biopsy has produced quite a bit of "coughing up blood" but this is not totally uncommon.
Now, we wait for (1) blood test results possibly tomorrow and (2) biopsy results possibly Thursday. We also await (3) scheduling of another IVIG infusion. As you may recall, this is the $13,000.00 Intravenous Immune Globulin infusion and is a plasma product formed by taking antibodies from about 20,000 donors and mixing them together. This will be her third infusion.
Stay tuned.
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Hey Guys,
Wow! Sounds like it's been a wildly succesful trip so far. You must be very pleased with the progress reports. Hope the biopsy results etc. produce more good news. We've got our fingers crossed.
Love to all,
Steve & Trina
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