As I suspected, they are continuing her steroid and antibiotic treatments in the hospital with additional tests planned tonight or tomorrow to explore the reasons for her continued shortness of breath and overall weakness. Her voice is just a whisper at times.
Pain Management Clinic will recommend drug treatment to the transplant team so we hope they will agree and implement accordingly. Pain is not terribly severe unless she is exercising or walking but regardless, we want to find a solution for the future.
Depending upon the results of these tests, she may have to have the chest tube reinserted (ouch....that was painful) or if fluid build up is not a problem and if the scan shows aspiration of reflux acid into the lungs, they will try to schedule the stomach surgery as quickly as possible. Until then, she is not allowed any water and pills must now be crushed and administered through the stomach feeding tube.
Her former pulmonology doctor from Duke came by for a social visit today and she chided him about not telling her it would be this bad but, he reminded her that he told her over a year ago that she was trading one serious disease for another and encouraged her to keep the faith that things will get better. He did not however, mention a timetable for that. smile.
A couple of our transplant friends Wayne and his wife Carol came by to say hello today. Wayne is back for a clinic visit and scheduled bronc and appears to be doing well. He got his lungs about a month before Joy. We wish them the best.
We will wait and see what tomorrow brings. Good night.
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2 comments:
Hey Guys,
That pulmonologist sounds like he knows what he's talking about. Keep the faith. Maybe those pain specialists can finally provide some help. Hope Joy feels well enough to watch the big game this weekend. We have a hunch it will cheer her up! We'll all be at the game to see the carnage in person... We'll wave to you!
Love to all,
Steve & Trina
Dear Joy and family
Thanks so much for keeping all of us long distance friends up to date on Joy. She is often in my thoughts and prayers and I miss her presence at our conference events.
Keep the faith, Joy! I am sending you many prayers of strength and patience!
Much love
Lisl from the Northern Illinois UMC
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