The biopsy results are in and the IVIG is complete so now we focus on wrapping up our final day in Durham and packing the truckster for the journey home tomorrow.
The initial results from the biopsy showed no signs of rejection. A big relief! The IVIG so far, has not produced expected flu like symptoms. That's OK with her.
Overall results of this visit:
No evidence of rejection at this time (lab still following sample)
IVIG complete without complications thus far
Reduction in mg. doses of two anti-rejection meds
Stopping the insulin injections (providing routine checking indicates reasonable range)
Removed the feeding tube and must now rely 100% on nutritious diet--more than just chocolate
Blood tests catagories within reasonable ranges
Joy must write a letter to transplant team to request donor information
Three month return in September--"3 months---what will we do with our time" ????
NOW, if she only felt better!
Friday, June 27, 2008
Tuesday, June 24, 2008
Wizards deliver, so far........
Monday's clinic visit resulted in stopping insulin injections providing of course, her blood levels remain within an acceptable range. Her Prednisone med was cut in half and the doctor said she should stop the can feeding and felt the tube should be removed. Chest x-ray was satisfactory and spirometry numbers were lower than last visit (she checks this daily at home) which may have worsened due to stomach bloating and therefore pushing on her lungs and diaphragm. It could be due to rejection and we anxiously await the biopsy results.
Tuesdays clinic was also good since the doctor removed her feeding tube and Joy could not be more pleased. She was ready to do battle but that was not needed. Next visit in six months. Now she must eat smart. Small slow meals of nourishing foods or the tube comes back.
Afternoon bronc went well and doctor said lungs looked pretty good. Biopsy has produced quite a bit of "coughing up blood" but this is not totally uncommon.
Now, we wait for (1) blood test results possibly tomorrow and (2) biopsy results possibly Thursday. We also await (3) scheduling of another IVIG infusion. As you may recall, this is the $13,000.00 Intravenous Immune Globulin infusion and is a plasma product formed by taking antibodies from about 20,000 donors and mixing them together. This will be her third infusion.
Stay tuned.
Tuesdays clinic was also good since the doctor removed her feeding tube and Joy could not be more pleased. She was ready to do battle but that was not needed. Next visit in six months. Now she must eat smart. Small slow meals of nourishing foods or the tube comes back.
Afternoon bronc went well and doctor said lungs looked pretty good. Biopsy has produced quite a bit of "coughing up blood" but this is not totally uncommon.
Now, we wait for (1) blood test results possibly tomorrow and (2) biopsy results possibly Thursday. We also await (3) scheduling of another IVIG infusion. As you may recall, this is the $13,000.00 Intravenous Immune Globulin infusion and is a plasma product formed by taking antibodies from about 20,000 donors and mixing them together. This will be her third infusion.
Stay tuned.
Tuesday, June 17, 2008
Wizards of Durham
No, it is not another Harry Potter movie, the Wizards of Durham are the doctors that we will look to next week regarding rejection, donor information and stomach issues and probably other things that they will find that will come out of left field. "The element of surprise"!
The bags are packed, the truckster loaded with gas and luggage so Joy, Kayce and Wayne will head out tomorrow for another pilgrimage to DUMC.
Joy's ONE year anniversary will be July 1st and while we are grateful that she is kinda hanging in there, her donors family will have their 1st anniversary which undoubtedly is another step in their healing process of losing a loved one. We hope to find out some information on Joy's donor now that the one year has elapsed.
Hopefully, I will have some good news to report by mid week, next week so until then,
Happy Trails to You.
The bags are packed, the truckster loaded with gas and luggage so Joy, Kayce and Wayne will head out tomorrow for another pilgrimage to DUMC.
Joy's ONE year anniversary will be July 1st and while we are grateful that she is kinda hanging in there, her donors family will have their 1st anniversary which undoubtedly is another step in their healing process of losing a loved one. We hope to find out some information on Joy's donor now that the one year has elapsed.
Hopefully, I will have some good news to report by mid week, next week so until then,
Happy Trails to You.
Subscribe to:
Posts (Atom)
