Camp was not fun today!
Joy's day started with nausea, headache and vomiting and exacerbated by fumes from wax and stripping the floors in adjacent hospital rooms. It gave me a headache as well. Then the doctor tells her the Organized Pneumonia is significant in both lungs and her esophagus is inflamed and he is not sure what is causing it. The biopsy has not yet isolated the strain. They suspicion ed it may be acid reflux and ordered a barium swallow test which did not show evidence of reflux. The doctor is perplexed.
Then we had some issues over getting a face mask quickly for her CPAP machine since they have determined that the BIPAP machine is no longer necessary. Since her doctor is taking a cautious approach to determining the cause of the pneumonia and inflammation, he has taken away her ice chips and sips of water except for sips to take meds. Then during her discussion with one of the Transplant Team doctors, they indicated it may take up to six months to get feeling better. Her primary care doctor told her he may send her home tomorrow depending upon how her next chest x-ray looks and neither of us are necessarily happy about that because she still does not feel well. Some times insurance requires the "treat'em and street'em" philosophy so this could be the underlying reason to hasten her stay. The doctor says he feels she is at the point where he can medicate her from home and see her in Clinic for monitoring.
So, this was not a good day. Joy is ready to leave camp against all medical advice.
She remains critical of her decision to have the lung transplant and absolutely has nothing good to say about Duke. I still cannot blame her for the first part. All of this and she still cannot eat or drink for at least a couple months, requires stomach surgery, more days of hospitalization and more recovery issues. But, what is done is done and I just hope she doesn't give up. That, I am not sure of. We didn't know what we didn't know, so we must proceed.
Remember Roseann Roseannadanna (Lisa Loopner played by Gilda Radner)? "It's always something Jane". Tomorrow will be something else.
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2 comments:
Sounds like it's time to cowboy up! Get tough and ride it out. Joy's been through so much, we have no doubt she'll leave this speed bump in her dust. Still, as you point out Wayne, it's always something! Hope you can both draw on the inner strength (again) that's brought you so far. And we predict that Joy will have good things to say about Duke again-- Just maybe not for another 6 months or so. Hope she's feeling better soon. Keep the faith!!
Love, Steve & Trina
You guys have a long way to go but look at how far you have come. It has been rough and bumpy but you have each other, your family and your faith. I have to mention the best care you could find when deciding to go for this. Joy loves Duke and I am certain once she feels better she will continue to love the university, hospital and transplant team. Keep the faith! God is good!! Sharon
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